Parents ‘don’t have the guts’ to tell daughter, 6, she has two years to live

The parents of a six-year-old with a brain tumour say they "don't have the guts" to tell her she has less than two years to live.

Madeline Suy was rushed to a Sydney hospital with a severe migraine on November 28.

Doctors performed an MRI that morning, and in the afternoon her parents were given the worst possible news – their daughter has an untreatable tumour in her brain stem.

Diffuse Intrinsic Pontine Glioma is considered the "deadliest and most devastating" of all childhood cancers, with an average survival rate of nine to 12 months.

It's incurable because the tumour spreads into healthy tissue rather than staying contained.

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Madeline, who lives with her mum, dad and two-year-old brother Jamison, hasn't been told about her grim prognosis.

"All she knows is that she is sick and having really bad headaches and she's getting help from the doctors to try and fix this problem," Alan told news.com.au.

"We don't have the guts to tell her any more than that because she's only six."

He said the family is holding out for a miracle, hoping that "having a positive attitude will manifest good energy and for the universe to heal her".

Renowned neurosurgeon Dr Charlie Teo, who diagnosed Madeline, says her tumour is "likely an aggressive high-grade cancer" but believes some of it may be able to be removed.

However the procedure is high-risk, with complications including paralysis or loss of senses.

On a GoFundMe page created to raise money for Madeline's medical expenses, Alan wrote: "In some cases this prolongs the child's life, in others it makes no difference.

"It's a high risk surgery, so we have to think about it. It's the biggest decision of our lives!"

If Madeline's exploratory biopsy comes back with good results, she could undergo a trial of targeted chemotherapy which could prevent the cancer from spreading further.

"We just know that we want to give her the absolute best chance of pulling through this and living the life that she deserves," he said.

"We just need to do whatever it takes for our little ray of sunshine."

The GoFundMe has already raised more than $94,000 (£53,000), and Alan said any unneeded donations will go to charity.

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